Re: Post YOUR photo
Correct hemophilia is a bleeding disorder where the person is missing a clotting factor. Factor VIII (Originally Posted by Cana-Balsitic
, or type A, is the most common missing factor the second is IX (9), or type B, is the second most common. Then there are levels of servairty mild, moderate, and severe, that just is a mesurement of how much clotting factor you have in your system in regards to normal people. <1% Severe Hemophilia Can bleed without injury (spontaneous) 1%-5% Moderate Hemophilia May bleed only a minor injury 5%-49% Mild Hemophilia May only have bleeding problems after injury or surgery 50%-150% Normal No abnormal bleeding. I have Type A severe.
And yes we do bleed more then others but not as extreme as most information out there would have you believe, I have cut off about 1/2 an inch of my thumb with a razor blade and I'm still here! I have gotten the normal bruises and scraps as a kid (sliding in gravel FTW!) without any major problems.
The main thing is soft tissue bleeding like in the muscles and joints. Joints are the main problem because over time all the bleeding eats away at the cartilage and you lose range of motion. So after time you need to get joints scraped out and stuff like that, actually I have two friends around 19-20 that are having joints worked on. We are a close knit community because it is such a rare disorder, I actually have a tattoo (yes a bleeder with a tattoo) of our "Blood Brothers logo on my right shoulder.
Well class, that wraps up our first session of Hemophilia 101. LOL
Reply With Quote
